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HEALTH AND WELLBEING - PEER SUPPORT - TRAUMATIC BRAIN INJURY

INDIVIDUALS     ORGANISATIONS     PRODUCTS     SOCIAL MEDIA     SUPPORT GROUPS

 INDIVIDUALS

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CHERYL and JONATHAN KOENIG 2354 views AUST
At the age of twelve Cheryl's son, Jonathan, was involved in a horrific car accident. He was given very little chance of survival and when he did miraculously pull through doctors predicted that he would most likely never walk, talk, or even eat again. Cheryl refused to accept this prognosis and set out on a relentless quest to save her son. Now, ten years since his horrific accident, Jonathan can walk well, has just begun to run and is learning to drive. He can now ski, swim laps and play tennis and astounds many with his piano playing skills. All this as well as working five days a week in three part-time jobs! Cheryl has written two books since Jonothan's injury and 'Paper Cranes' is two journeys in one story: the incredible journey of Jonathan's fight back to be the best he possibly can, and the emotional journey that I share as his mother at first grieving for the talented son I lost, and then reaching a place of understanding and accepting him for all that he is now.
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DANIEL WINDHEIM - 'Life After Traumatic Brain Injury' 2065 views USA
As you know, life after a TBI is very different than before. I sustained my TBI in a car accident in 1979. Since then I have worked extremely hard to make my life better and more productive. My goal still remains, to raise awareness of this silent epidemic and to share my book and other experiences with those who can benefit from it.
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MICHAEL GERMANN 2532 views CAN
I have been doing art work and Photography since 1989 when I was diagnosed with a brain injury which prevented me from working. This was in a way a blessing, as I discovered that photography and art are enjoyable way for me to pass time.
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SAUL RAISIN 1922 views USA
In 2006 at age 23 I crashed in a professional bicycle race. The subsequent effects led me to endure a coma, substantial bodily damage and a traumatic brain injury. My outlook was bleak. Medical professionals did not know if I would survive, and if I did, what kind of life I would lead. Miraculously I awoke from my coma only to enter a world of doubt and uncertainty. Now fully recovered, I have created the 'Raisin Hope Foundation' to help transform hope into knowledge. My goals are to support brain injury research; connect individuals and families whose lives have been affected by a brain injury with support and information regarding and to promote public awareness and understanding of people with disability as a result of brain injury.
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 ORGANISATIONS

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BRAIN INJURY AUSTRALIA 1510 views AUST
Brain Injury Australia (BIA) represents all Australians with acquired brain injury (ABI) whatever the cause. BIA was formed at the first national community-based conference on ABI in 1986. The Federal Government began funding BIA in 1991.
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BRAIN INJURY RESOURCE CENTER 293393 views USA
Lots of links to useful information for people with head/brain injuries
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BRAINLINE 3701 views USA
BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine will include a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury. BrainLine will serve anyone whose life has been affected by TBI.Through BrainLine, we seek to provide a sense of community, a place where people who care about TBI can go 24 hours a day for information, support, and ideas.
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SPINALCORD.COM 657 views USA
Resource Center for Brain & Spinal Cord Injuries
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SYNAPSE HOUSE CHICAGO 1167 views USA
Synapse House is a nonprofit organization whose mission is to ENGAGE, EMPOWER and EMPLOY individuals that are affected by brain injury and stroke. We ENGAGE individuals through productive and healing work in our Clubhouse Day Program. We EMPOWER individuals and families with our Boot Camps and support group that educate and build relationships. We address vocational goals so that companies can EMPLOY our dedicated individuals. Our FLOUR TO EMPOWER Bakery and Employment Unit provide work readiness skills and real life training. We believe that connections aid recovery, that adaptation is necessary to maximize function, that work is healing, that abilities persist and that hope is always present.
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TBIHOME.ORG 933 views USA
TBI Home is a peer support website for people living with brain injury, their families and friends to support each other by sharing their experiences. We expect persons using this site to keep the focus positive and supportive. Topics such as politics and religion are not appropriate for this site. We reserve the right to remove any posts that we deem necessary.
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THE COMMUNITY CLUBHOUSE FOR BRAIN INJURY 1715 views USA
The Community Clubhouse for Brain Injury (formerly Ballinger TBI Clubhouse) is a community day based program that offers long-term support, in a non-medical setting, to brain injured individuals who want to regain their independence, work skills, and social relationships.
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 PRODUCTS

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BRAIN INJURY SURVIVOR'S GUIDE 1601 views USA
Never Give Up! Brain Injury Survivor's Guide: Welcome to Our World is written for Brain Injury Victims and their families by a Brain Injury Survivor and her family. INTRODUCING B.R.A.I.N.-an innovative strategy for memory improvement. Learn the strategies Beth used to overcome memory, cognitive and behavioral problems after her brain injury. Dozens of lists and planning pages provide a way to compensate for a brain that is not performing "as it once did." "Knowledge is Power to a Brain Injured Person."
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 SOCIAL MEDIA

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ABC RADIO 'ALL IN THE MIND' 2129 views AUST
Impulsive behaviour, anger, mood swings, poor concentration, memory loss. A knock to the head that qualifies as a brain injury can transform your behaviour in unexpected ways. Confronting research suggests acquired or traumatic brain injuries - past and recent - are rife in prison populations, with little to no screening or targeted interventions in place.
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WASHINGTONIAN MAGAZINE ARTICLE 'I Wanted My Brain Back!' 2197 views USA
What happens when you’re a PhD economist and you suddenly can’t remember things or think straight? One woman’s story of perseverance reveals some of the mysteries of the brain.
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 SUPPORT GROUPS

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BETSY'S SUPPORT PAGE FOR TBI. 1655 views INT'L
Betsy's Support Page for Traumatic Brain Injury - Information, help and support for family members, caregivers, survivors, loved ones and all affected by TBI.
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BRAIN INJURY INFORMATION NETWORK 1783 views USA
TBINET was started in 1995 by a small group of Caregivers who had loved ones with various types of brain injuries. We had a strong need to communicate with others in our situation, but had little time to do so and attend local Brain Injury Support meetings. Also, many of us did not have these support groups in our local area. In 1995 we put up a website devoted to helping people find information on ABI/TBI and we provided a little of our own.
Click Here... TRAUMATIC BRAIN INJURY
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CAFE PLUS NEW YORK 1910 views USA
We are proud to announce the opening of a coffee shop in East Syracuse, New York named Cafe Plus. It's for people who have survived a head-injury and is open every Saturday afternoon from 12 to 4. There's coffee, bagels, ice tea, popcorn, conversation, and much more! What makes it so different? Simple. It's run by and for head-injured people. Of course friends, family members, and professionals are always welcome to visit too, but the primary focus is on people who have survived a traumatic brain injury.
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TRAUMATIC BRAIN INJURY SUPPORT GROUP 1687 views USA
Note: Just want to say that this page is here for support and advice for others. It has been fabulous and we have create a nice support system for many. That being said, please be sure to check with your healthcare provider and/or doctor regarding anything medically. We are not doctors. We are just regular people like you looking for someone going through the same thing we are. I hope to find others who have suffered a TBI or know someone who has and needs a place to talk. Every TBI injury is life altering no matter the severity. That has been the hardest part of this whole thing is finding people to talk to about it. I hope this website can bring people together and help raise awareness at the same time. I hope this site can provide a place for people to talk, share their fears, frustrations, joys, etc.
Click Here... TRAUMATIC BRAIN INJURY
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MARTYN ASHTON 'BACK ON TRACK'!! website 
 NEVER EVER SAY 'NEVER!'....After sustaining a life changing paraplegic spinal cord injury in 2013, Martyn Ashton, mountain bike and Road Bike Party legend, is Back On Track. Watch this great downhill mountainbiking action with the man...

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MARTYN ASHTON 'BACK ON TRACK'!!



JAIMEN HUDSON - 'THE VIEW IS BETTER FROM UP HERE!' website 
 I have always been passionate about the outdoors, as a youth my days were filled with activities like riding dirt bikes, skateboarding, surfing and scuba diving. Learning to dive at age 10 only added to my love of the ocean. In 2008 I had an accident that left me a quadriplegic and in 2014 I became interested in drone photography and videography, although I wasn't sure I would be able to use the remote controller due to my reduced hand function. Since then though I've been lucky to have my work featured in many prominent media outlets and publications and have also won the Western Australia 'Young Achiever Award' in 2018. I hope you enjoy what you see...!

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JAIMEN HUDSON - 'THE VIEW IS BETTER FROM UP HERE!'


LONELY PLANET ACCESSIBLE TRAVEL PHRASEBOOK website 
 All travellers will get more out of their trip by being able to speak a few words of the local language, but for people with a disability it’s often vital to be able to explain your particular needs. Since standard phrasebooks are unlikely to contain the language you need to talk about needs around disability we’ve gathered together some disability-specific words and phrases and translated them into as many different languages as we practically could. Although things are slowly changing for the better, there are still plenty of barriers to travel for people with a disability – language doesn’t have to be yet another. 

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LONELY PLANET ACCESSIBLE TRAVEL PHRASEBOOK


BJOERN ESER & 'THE ACTIVE AMPUTEE' website 
 I am Bjoern Eser, the creator of The Active Amputee. I am a father of three amazing children, a husband to an equally amazing wife, a thankful cancer survivor, an outdoor enthusiast, a passionate development practitioner and a very active above-the-knee amputee.
I have set up The Active Amputee as a resource page from amputees for amputees. It aims to inform, it aims to inspire and it aims to engage. Nothing more and nothing less. It‘s as simple as that.
At the moment The Active Amputee publishes a new post once a week. 

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BJOERN ESER & 'THE ACTIVE AMPUTEE'


RAIDaptive DIVING website 
 The RAIDaptive program was designed to bring the sport of diving to persons with disabilities by adapting the RAID Open Water 20 course to the abilities demonstrated by the diver with disabilities. The RAIDAptive Course is designed to teach individuals with disabilities to become certified divers with the goal of using certified RAIDaptive Dive Buddies to compensate for those skills that they cannot independently perform. The student will be certified according to the following Designations:

Designation 1- The student must be able to perform all skills independently with the exception of Entries and Exits
Designation 2 - The student must be able to perform all skills independently with the exception of Entries, Exits, Emergency Ascents, Maintaining Positive Buoyancy at the surface by oral inflation of the BCD
Designation 3 - The student must be able to breathe continuously and monitor gas supply. The student will require assistance with all other aspects of diving.
To become a certified RAIDaptive Open Water diver, the students need to have basic swimming skills, be comfortable in the water, and should be in a good overall health, have a mature attitude, sound judgement and self-discipline to follow the guidelines that they will be taught for safe diving.
Medical clearance from a registered diving Doctor is also required

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RAIDaptive DIVING


TOM DOUGHTY - LAP GUITAR TUTORIALS website 
 These tutorials have been developed by Creative United and Tom Doughty to offer an introduction to playing Lap Guitar. Specially created to accompany workshops on his tour of the UK’s 12 Spinal Injury Units in early 2019, these tutorials are for anyone with limited upper limb movement.

Creative United is part of a consortium with OHMI, Drake Music, Youth Music and OpenUp Music, whose aim is to make music and musical instruments more widely available, particularly to disabled people for whom playing a conventional musical instrument may be difficult or impossible.



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TOM DOUGHTY - LAP GUITAR TUTORIALS







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