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HEALTH AND WELLBEING - STUFF FOR PARENTS AND CARERS
INDIVIDUALS ORGANISATIONS PRODUCTS SOCIAL MEDIA SUPPORT GROUPS
| Four and a half months after her boyfriend Kev becomes a paraplegic in Northern Canada, Emma accompanies him to Australia, where they embark upon a 18,000 kilometre camping and backpacking trip; travelling across the continent with Emma’s anxious overprotective mother, through the remote north west with a free-spirited British backpacker and down the verdant east coast alone, their relationship hanging by a thread.
A unique travel memoir, this story takes the reader on a whirlwind trip around Australia guided by a young woman struggling to accept her boyfriend’s paralysis, and a paraplegic man backpacking during a time many spinal injured patients remain in hospital.
Written from Emma’s perspective with dark humour, she examines the dynamics of their relationship and the impact of the injury, difficulties faced as Kev struggles to learn to live in a wheelchair in harsh and challenging country, and encountering perceptions of the disabled they had recently held themselves.
Written with honesty both heartbreaking and humorous, this story will appeal to anyone with a love of adventure and dreams of leaving it all behind during difficult times.
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| At the age of twelve Cheryl's son, Jonathan, was involved in a horrific car accident. He was given very little chance of survival and when he did miraculously pull through doctors predicted that he would most likely never walk, talk, or even eat again. Cheryl refused to accept this prognosis and set out on a relentless quest to save her son.
Now, ten years since his horrific accident, Jonathan can walk well, has just begun to run and is learning to drive. He can now ski, swim laps and play tennis and astounds many with his piano playing skills. All this as well as working five days a week in three part-time jobs!
Cheryl has written two books since Jonothan's injury and 'Paper Cranes' is two journeys in one story: the incredible journey of Jonathan's fight back to be the best he possibly can, and the emotional journey that I share as his mother at first grieving for the talented son I lost, and then reaching a place of understanding and accepting him for all that he is now. |
| Blue Sky July is the story of a mother and a son; of enormous courage and love; of the strength of the human spirit. Lyrical, inspiring and utterly compelling, Nia Wyn's powerful but acutely sensitive account of her experiences will make an indelible impression on all who read it. If you have healthy children this book will make you count your blessings. If you have a child who faces the challenges Joe and Nia face, this book will make you cheer.
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| My son, Henry, took his first real steps on Easter Sunday 2017. He saw his cousin, who was two months older and toddling all over, and thought to his little baby self, “Hey, if he can do it, so can I!” From then on, it was nonstop.
One of my biggest worries came from not knowing how mobile Henry would be. Would I be able to keep up with him in my wheelchair? Would he still progress at normal stages because he didn’t see me walking? My greatest fear of all was that he would take off into traffic and I wouldn’t be able to stop him.
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| Of the many unknowns that awaited us on the other end of Kelly’s pregnancy, Ewan’s name was (finally!) the first to be resolved. Like all first-time parents, we had a thousand questions.
My concerns about being a parent with a disability weren’t related to anything existential — like, what will he think about having a dad in a wheelchair? Or, what will his friends think? I knew enough fathers through wheelchair rugby to understand that to a baby, you’re not the wheelchair guy, you’re just dad.
But some of those dads could also count the number of times they’d changed a diaper on one hand. I have C7-8 motor-complete quadriplegia, which manifests in weak hands and poor trunk stability, and that was where my concerns were: How long was he going to tolerate my floppy-fingered fumbling with a diaper? How would I carry him around and get him into and out of a car seat?
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| Stacey has not let a devastating accident that left her a quadriplegic and dependent on a wheelchair at 12 years old slow her down. Instead she picked up the pace and has used her life experience and personal philosophies to become Australia’s leading keynote speaker and facilitator on resilience and turning adversity into an asset, delivering keynote speeches, training, consulting and coaching to organisations such as Telstra, South East Water and CSIRO. More recently Stacey has added athletics to her repertoire after 22 years of inactivity to further stretch her comfort zones, becoming the first women in her classification to compete in Australia, and is training to qualify for the Paralympic Games. In her spare time you are likely to find Stacey in the nearest patch of sunshine with a book recharging her solar powers. |
| The book is a true-life love story, following the journey of Tania and Warren as they overcome all obstacles and share their life together. Partner Warren is in a wheelchair after a life-threatening brain tumour. Tania is his full-time carer. Love Has No Limits explores what it means to be young and desperately in love with someone who may not be here tomorrow.
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| Welcome! I’m Priscilla. I am mom to 3 boys and wife to Charlie.
I blog about my every day ordinary life on wheels so I can show the world that life doesn't have to stop just because it was turned upside down! |
| We know that people with disabilities can parent: 6.2 percent of all parents with children under the age of 18 have some sort of disability.
We also know that many parents with disabilities feel discriminated against when undertaking the adoption process.
There are no simple solutions to eradicating age-old biases or to eliminating the barriers that may arise as child welfare workers undergo their very important work of assessing a potential parent’s ability to care for a child. But there are an increasing number of online resources and organizations that provide support and information to parents and potential parents with disabilities. |
| We are an information, support and advocacy organisation for children with a disability and their families, in Victoria, Australia.
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| 3 million Australians are living with depression or anxiety
beyondblue provides information and support to help everyone in Australia achieve their best possible mental health, whatever their age and wherever they live. |
| The peak body for carers in Australia. This site provides links to State and Territory Carers Resource Centres, and links to other carer's organisations and useful sites worldwide. |
| Carers NSW is an association for relatives and friends who are caring for people with a disability, mental health problem, chronic condition or who are frail aged. |
| To find out your child has a disability can be traumatic and stressful. It may be the beginning of a long road to find the best care and support for your child’s needs.
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| A community site providing information and support for people who have been injured as a result of an accident, and for their carers |
| The Disabled Parenting Project (DPP) is an online space for sharing experiences, advice, and conversations among disabled parents as well as those considering parenthood. The DPP also serves as an information clearinghouse and interactive space for discussion and connection. The DPP hopes to inform social policy concerning this underserved population through the development of scholarly research, fact sheets, and training resources, as created by and for the community, and will set the stage for additional research and social action to address the important issues of discrimination and disparities. |
| As a disabled parent, you may feel isolated, on trial or having to prove you are a "good" parent. You may also feel there is not enough useful information, advice or support to help you? You are not alone, as we know of others who are or have been in a similar situation! DPN can provide information, advice, peer support and contact with other Disabled parents throughout the UK. |
| Novita has grown to become South Australia's premier children's charity ? and a recognised and celebrated world leader in the provision of therapy, equipment and family support to families living with disability. |
| United Spinal's information page about Fertility and Parenting, parenting while paralyzed, resource center and online support |
| Our section on children with a disability explores topics such as your feelings, others' reactions and working with professionals. Supported by the NSW government, it includes a handy reference of disability terms. |
| Revitalise provides breaks for disabled adults, children and their carers at accessible UK Centres. |
| There are a number of organisations and charities that offer support groups. |
| More than ever before, technology makes it possible for children with disabilities to lead independent and fulfilling lives.
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| The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.
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| 3E Love is a social entrepreneurial experiment to change the perception of disability to promote a social model of disability. The company's trademarked Symbol of Acceptance (wheelchair heart logo) is the drive behind it's social mission to provide the tools for others to embrace diversity, educate society, and empower each other to love life. What was once just a small Chicago disability pride clothing brand is now an international movement of acceptance. People with disabilities are everywhere, and thousands of t-shirts and other items later, so is the 3E Love message! |
| The wheelchair carrier attaches to the front of manual wheelchairs, with its own single wheel providing support and stability. It uses a universal fitting that allows it to be attached to all manual wheelchairs, both traditional and lightweight styles. The carrier is free standing when not attached to the chair so that the child can be strapped in and out more easily by the wheelchair user. The Babycarrier folds flat for ease of storage and transportation.
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| Book written by Glen Dick, C5 quadriplegic Dad and Facebook page |
| We are a family of five living in New Zealand passionate about travelling, particularly around Accessible Travel. We just love getting outdoors exploring new places, discovering adventure and creating new memories. However, when you factor in a wheelchair there is often unforeseen challenges to overcome. That’s why we decided to share our experiences with other’s who face similar issues |
| (NB: Look for this at the end of "ANYTHING FOR BABY" article)
Glen Dick, 41, a C5 complete quad, and his wife, Monica, also 41, recently celebrated their daughter Elaina’s first birthday. Her conception and birth was the result of years of research, perseverance and commitment. The family lives in Chalfont, Pa., where Monica works in marketing and Glen, previously a teaching assistant, is a stay-at-home dad. In this interview, Glen shares how he and Monica were able to get pregnant. |
| My husband, Adam, and I have osteogenesis imperfecta. OI is a genetic condition that causes our bones to break easily. We are little people and full-time wheelchair users. After dating for nine years, we were married almost two years ago. It was a day that was so perfect, it still feels like a dream. |
| TBINET was started in 1995 by a small group of Caregivers who had loved ones with various types of brain injuries. We had a strong need to communicate with others in our situation, but had little time to do so and attend local Brain Injury Support meetings. Also, many of us did not have these support groups in our local area. In 1995 we put up a website devoted to helping people find information on ABI/TBI and we provided a little of our own.
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| We, mobileWOMEN.org believe that disabled women today steer their own lives. Empowered by knowledge, they are having children, pursuing careers, competing in professional sports arenas, becoming community leaders, and living life to the fullest. Now, at mobileWOMEN.org there is a place to unite; ask questions, share ideas, insights, and experiences, and learn from a variety of perspectives.
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| Australian website with closed Facebook group, links to resources, community |
| This site aims to provide education and support about sexuality, including information about anatomy, behavior, civil rights, abuse prevention, gender identity, disability, and relationships in easy to understand, sex positive language with extensive links to other resources. Everyone is welcome to use this site to learn the facts about sex and relationships. Although initially designed for persons with learning disabilities, it has expanded to include people of all ages, abilities, and sexual orientations.
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